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Gathering in Cape Town in October 2023
Thank you Caring Matters Now for the stunning book!
Oct 27, 2023
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Patient Inclusion Seminar at the 7th Combined Dermatology Congress of South Africa 2023
Such a privilege to be part of the first ever Patient Inclusion Seminar at the 7th Combined Dermatology Congress of South Africa 2023 in...
Aug 27, 2023
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Thank you Caring Matters Now
Caring Matters Now, the UK charity for those affected by Congenital Melanocytic Naevi, donated five HOW DO YOU C ME NOW? books to us....
Aug 26, 2023
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Join the GRIDD Study
Become part of the first ever global research on the impact of dermatological diseases. https://globalskin.org/research/gridd-about...
Aug 1, 2023
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Celebrate Rare Disease Day 2021
Celebrate Rare Disease Day by printing out our poster with your personal message and posting a picture of yourself on your social media...
Feb 23, 2021
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Happy Rare Disease Day!
Raising awareness for CMN during the Western Cape Nipper Champs 2020 on Hout Bay beach.
Feb 29, 2020
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A Black Leopard Named Rosco
On our recent adventure to Vredenheim we had the pleasure of visiting the big cats park. At the entrance we were welcomed by two of the...
Oct 23, 2019
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Naevus International Conference in Brussels, Belgium
On Thursday, the 12th of September 2019, Naevus International (NI) held its second annual conference bringing together doctors,...
Sep 12, 2019
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Naevus International Patient Advocate Meeting in Brussels, Belgium
Patient advocates from Belgium, Colombia, the Czech Republic, France, Germany, Italy, the Netherlands, South Africa, Spain, the UK, and...
Sep 11, 2019
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How I Reclaimed My Identity Beyond My Skin Condition
Read the whole article: https://www.stylist.co.uk/life/skin-positivity-reclaiming-identity/278760?utm_source=facebook&utm_medium=share&ut...
Aug 3, 2019
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Naevus International Conference 2019 in Brussels, Belgium
Naevus International (NI) is a cross-disciplinary initiative which aims to disseminate information on Congenital Melanocytic Naevi (CMN)...
Jun 21, 2019
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My Emily Journey
Getting through your big checkup scans during pregnancy and the excitement of bringing a little life into the world, definitely pushes...
Feb 17, 2019
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HOW DO YOU C ME NOW?
Caring Matters Now, the UK based patient advocacy group for Congenital Melanocytic Nevi, has partnered with photographer Brock Elbank to...
Feb 5, 2019
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An afternoon with the NSRI
Thank you NSRI Simon's Town for the most amazing time! Read more: https://www.nsri.org.za/2018/10/50213/
Oct 15, 2018
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2018 Gathering in Simon's Town, Western Cape
The second weekend in October saw our third annual gathering. People travelled from as far as Limpopo and Gauteng to Simon's Town in the...
Oct 15, 2018
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Annual Gathering 2018- Programme
Here is our final programme for this weekend: Friday, 12th October 2pm onwards, Arrival at Froggy Pond Resort, Simon's Town 6pm Braai...
Oct 1, 2018
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What an inspiration!
This beautiful video was made by Chloe, a Nevus owner from the United States. Not only does it explain tissue expansion as a form of...
Sep 7, 2018
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Join us for our Third Annual Gathering
We are very excited to announce the venue for our third annual gathering - Froggy Pond Resort in Simon's Town near Cape Town. Please join...
Aug 6, 2018
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Naevus International
We are very honoured and proud to announce that we are part of the new global organization Naevus International! Their first conference...
Jun 4, 2018
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Happy Rare Disease Day!
To mark International Rare Disease Day, a group of us walked up Table Mountain today. Andrew Patterson, who is climbing Table Mountain...
Feb 28, 2018
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