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Naevus International Conference in Brussels, Belgium


On Thursday, the 12th of September 2019, Naevus International (NI) held its second annual conference bringing together doctors, researchers and patient advocates from Belgium, Colombia, the Czech Republic, France, Germany, Indonesia, Italy, the Netherlands, South Africa, Spain, the UK, and the US.

Prof Veronica Kinsler presented on the progress of NI and plans for the future.

Marjolein van Kessel, leader of the NI patient support group network, spoke about how NI can help patient groups.

Ian Chance, treasurer for Caring Matters Now, presented on the How do you C Me Now? exhibition held in London in March 2019.

Dr Maanasa Polubothu of the Great Ormond Street Children's Hospital in London, UK, presented recent clinical advances in CMN:

J Pediatr Psychol. 2019 Jul 1;44(6):714-725. doi: 10.1093/jpepsy/jsz017.

Predictors of health-related quality of life and psychological adjustment in children and adolescents with congenital melanocytic nevi: Analysis of parent reports.

Masnari O1, Neuhaus K2, Aegerter T3, Reynolds S4, Schiestl CM2, Landolt MA1,3.

https://www.ncbi.nlm.nih.gov/pubmed/30916755

Pediatr Dermatol. 2019 Aug 29. doi: 10.1111/pde.13987. [Epub ahead of print]

Management of congenital melanocytic nevi in the plastic surgery clinic: Families' expectations and their persistent concern about malignancy.

Mosa A1, Ho ES1, Heinelt M1, Wong K1, Neuhaus K2.

https://www.ncbi.nlm.nih.gov/pubmed/31468600

Paediatric Dermatology

Final congenital melanocytic naevi colour is determined by normal skin colour and unaltered by superficial removal techniques: a longitudinal study

S. Polubothu, V.A. Kinsler

https://onlinelibrary.wiley.com/doi/abs/10.1111/bjd.18149



OCOMEN - Outcome measures for COngenital MElanocytic Naevi


Br J Dermatol. 2018 Feb;178(2):369-383. doi: 10.1111/bjd.16094. Epub 2018 Jan 19.

Laser treatment of congenital melanocytic naevi: a systematic review.

Eggen CAM1, Lommerts JE2, van Zuuren EJ3, Limpens J4, Pasmans SGMA1, Wolkerstorfer A2.

https://www.ncbi.nlm.nih.gov/pubmed/29077988

CASE REPORT

The biker‐glove pattern of congenital melanocytic nevi

Nicole W. Kittler MD, Erin F. Mathes MD, Veronica Kinsler MD, PhD, Ilona J. Frieden MD

https://escholarship.org/content/qt59j7b03b/qt59j7b03b.pdf?t=pxzh2j

Pediatrics. 2019 Mar;143(3). pii: e20182469. doi: 10.1542/peds.2018-2469.

Giant congenital melanocytic nevus treated with Trametinib.

Mir A1, Agim NG1, Kane AA2, Josephs SC3, Park JY4, Ludwig K5.

https://www.ncbi.nlm.nih.gov/pubmed/30792255

Dr Josep Malvehy of the Hospital Clinic of Barcelona, Spain spoke about CMN specific work and what patients and families should know.

Dr Heather Etchevers of the French National Institute of Health (INSERM) presented on the BRAF mosaicism: links between congenital melanocytic nevi and other conditions.

Dr Béatrice de Reviers, leader of the NI psychosocial team, introduced a patient therapeutic education programme "How to react to the way other people look at you?"

Dr Yasmin Khakoo of MSK Kids, New York City, NY, USA concluded the day with her presentation on the neurological conditions associated with large congenital melanocytic nevi.


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